Two weeks ago, we told you the story of Charlie Gard, a 11 month old English baby suffering from a genetic and deadly disease that remains waiting to be disconnected from the machines that keep you alive. His parents have lost the battle in front of the European Court of Human Rights, which did not authorize his transfer to the United States to receive experimental treatment.
This weekend numerous media outlets have echoed the letter that experts and doctors from several countries, including Spain, have sent to the London hospital where the baby is admitted, asking that stop the disconnection of the child for having evidence of a treatment that could work for you.
A ray of hope for Charlie
Little Charlie Gard, 11 months old, suffers from a serious, congenital disease with no cure called mitochondrial encephalopathy, which has kept him hospitalized in London's Great Ormond Street since October of last year. The baby has irreversible brain damage and is connected to several machines that keep him alive.
His parents have struggled a lot to move him to the United States to carry out a experimental treatment, but neither the hospital, nor the British justice nor, subsequently, the European Court of Human Rights have given them the reason, considering that the disease suffered by the baby has no cure and that undergoing experimental treatment would only increase their suffering, proposing to "disconnect" you from the machines of vital surprise and let him "die with dignity."
In fact, it was planned that the boy was disconnected on Friday from the respirator that keeps him alive.
But scientists from the Vall d'Hebron hospital in Barcelona together with two specialists from the Bambino Gesù hospital in Rome, two researchers from Columbia University and another from the University of Cambridge, sent a letter urgently to the London hospital where the little one is asking to stop their disconnection, and reporting a experimental treatment It could mitigate the effects of the disease you suffer.
"We have just had evidence that the experimental treatment we are talking about crosses the blood brain barrier, can reach the cerebrospinal fluid, so there is a possibility that it works and that the child's condition can improve" - ​​subscribes in the letter Ramón Martí, head of the group of neuromuscular and mitochondrial pathology of the Institut de Recerca del Vall d'Hebron
This treatment, known in English as "deoxynucleoside therapy", is being used in 19 patients, 13 of them in Spain, with a genetic abnormality biochemically similar to Charlie's, and although the researchers say that they have not been able to perform tests on animals, given the urgency of the case, they ask the doctors of the Great Ormond Street in London to reconsider offering it to the baby.
The London hospital has asked the London High Court to hold another trial to decide what to do, because despite the fact that their opinion on the child's health status remains the same, they believe that it must be Justice who decides "objectively" and "based on the facts" which is best for the child.
"Two international hospitals and their researchers have informed us in the last 24 hours that they have new evidence on the experimental treatment they propose" - said a spokesman for the British pediatric center - "We believe, like Charlie's parents, that it is correct to examine these tests"
Charlie's case is going around the world and has awakened the support of US President Donald Trump of the Pope Francisco and of millions of anonymous citizens who have contributed to the money-raising campaign that the couple launched to try to help their child.
Similarly, two American hospitals, the New York Presbyterian Hospital and the Irving Medical Center at Columbia University, have offered to help the British baby, according to the ABC newspaper.
Pending what the British Justice dictates again, there seems to be a ray of hope for the life of little Charlie.Via La Vanguardia, 20 Minutes
In Babies and More The courts authorize the withdrawal of the life support of a British baby suffering from an incurable disease
